I have a draft started about the anniversary of my narcolepsy diagnosis somehow flying by me earlier this month, but I'd rather talk about something way cuter than narcolepsy: To clarify, Frida is not a fox. She is my dog, of mostly indeterminate lineage. She reminds me of one though. On Tuesday, when my sister … Continue reading Frida the Fox
I've been wanting to write this for ages, but when I sit down something comes up (or over) or I manage to convince myself other things need to be done first. It's a little scary because a mention in the sidebar, tagged posts and references in my writing don't tell exactly what narcolepsy is or … Continue reading A dedicated post to explain narcolepsy
Synchronicity is one of my favorite words. I don't think that everything happens for a reason, but I try to see events and relationships through all the ways they influence one another rather than direct cause and effect - for better and worse. It helps me make sense of my story, how the good things … Continue reading Appreciating 2018
Essentially the last two months have went as follows: Cliff notes version? lost my job gained some contract work got a crazy, sassy adorable dog scheduled & confirmed multiple speaking presentations starting in January The second to last week of October, my hours at work were cut down. I ended up picking up shifts which … Continue reading Out with a bang
Heyyo, fair warning if you come here for the horse stuff - there are zero mentions of equines in this post. They'll be back though! :) The first weekend in October I went down to Indianapolis for the annual Narcolepsy Network Conference. Narcolepsy Network is this cool nonprofit organization founded in 1986 that educates, connects, … Continue reading Narcolepsy Network Conference
Seems like as good a time as any to catch up! Basically the month was a bit of a roller coaster, partly due to my own choices, others beyond my control. There were times I'd feel like writing and couldn't (or I gave up after enough interruptions) and then times that I could and didn't … Continue reading Now that September is over…
So, my riding lessons have been going really well. Work's been rolling right along, and the advocacy program I participated in from June/July has turned into this amazing community connecting me to other people with narcolepsy, who also happen to be pretty damn awesome aside from (because of? in spite of?) the diagnosis we share. … Continue reading Slight reality check
